Things are going well, all things considered. We’ve been home from the hospital since Thursday, and Tiny has improved a lot in color and tone (she gained almost a pound in the hospital–mostly fluids). Her feeding tube is hooked to an IV pole with a pump that she is being continuously fed through. This is a good and bad thing. Good: she’s eating! She’s getting the calories she needs to grow! She’s sleeping through the night–like 12 hours at a time (I still have to get up to refill her milk every 3 hours). No more stressful feedings! Bad: she’s been pretty miserable a lot of her awake time, and I can’t blame her; I would hate having a tube up my nose too. I have to hold her on the couch during all her awake time; normally I would put her in a baby wrap or lie her on a blanket but I can’t do either because she’s hooked to an IV pole and I can’t risk her pulling out her tube. I would be happy to just sit and hold her if it weren’t for my two other children and just other motherly duties that complicate that time. And we’re pretty much stranded here. They told me to try and not go anywhere, and taking the whole IV pole/pump/system would be a huge ordeal anyway. So I’m feeling a little isolated, and am especially grateful for the company of my sisters who have taken turns staying with me.
So. I’m so grateful that she’s getting the nutrition she needs/grateful for modern medicine, but I’m also struggling to adjust to the situation. I just keep telling myself you can get used to anything.
So you’re like, tell me about this dress already! Okay! Isn’t it exquisite?? My sister with her massively huge, kind heart and talented hands made this lovely little blessing dress for Tiny. It’s HAND smocked, and I love it with all my heart. I don’t think I’ve ever loved a single article of clothing as much as I love this little dress–both for sentimental reasons and because it’s so beautiful. I am blown away by the smocking, and love the sweet little appliqued details on the bottom. I adore the accompanying bloomers, shoes and hair band. LOVE IT ALL, EM.
We’ll bless her next month (a special prayer given by a worthy priesthood holder, in this case her daddy), and I’ll be sure and take a little photo shoot for the special occasion (with her tube it makes it difficult to play dress-up on a whim).
So that’s about the size of it. Thanks to all of you for your sympathy, prayers and support, we appreciate and feel it all.